Morgellons Disease Linked to Lyme Disease (sp. Morgellon's Disease, Morgelons Disease

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ex-Toronto Blue Jay has Morgellons

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Mysterious skin disease puzzles patients

06:59 PM CST on Tuesday, November 9, 2004

by Celine McArthur / Healthvue Reporter

(To talk to others with this disorder go to : http://lymebusters.proboards39.com/index.cgi?board=rash)

A mysterious skin disease is surfacing in Austin called Morgellons. It's a parasite-like disease that makes people feel like they have bugs crawling under their skin. The condition is a medical mystery. So, more often then not, it's diagnosed as a psychological disorder. That's where some patients say their troubles begin.

"When you lay down, as soon as your head hits the pillow, your hair starts crawling," says Becky Bailey.

"It gives you the sensation that you have worms under your skin or rats crawling on you," says Miles Lawrence.

These two people suffer from the rare skin disease called Morgellons.

"We really don't know what it is," says Ginger Savely.

But nurse practitioner Ginger Savely says she's seeing more patients in her clinic with the symptoms, like painful skin ulcers that spring blue fibers, white threads, and little black specks of sand-like material.

"Talking about it just sounds crazy but there are just a lot of things that come out of their skin," says Savely.

Doctors don't know what causes Morgellons, but Savely may have found a clue.

"About 10 percent of my patients with chronic Lyme disease have symptoms of this Morgellons," says Savely.

Savely specializes in Lyme Disease. She says people with the tick-borne disease have weaker immune systems and may be more vulnerable to the infection.

But health experts don't know for sure. One reason is there hasn't been much research on Morgellon's -- federally or by the Texas Department of Health.

That's because the disease isn't recognized as an official disease. Without that distinction, research doesn't get federal or state funding.

Because so little is known about the disease, 28-year-old Miles Lawrence had a difficult time getting doctors to take him seriously.

"They'll look at you funny. They give you this instant judgement, like 'OK, You're on drugs. You're seeing things,'" says Miles.

That's why 41-year-old Becky Bailey says she's living a nightmare.

"I knock myself out every night with drugs so I can sleep," says Becky.

So far Miles and Becky's only relief is one nurse practitioner, Ginger Savely, who listens.

"This is real and something that needs to be recognized and treated," says Miles.

"Not to turn away a patient that has symptoms like we're describing because you may send them home to their deaths," says Becky.

There are 1,100 hundred known cases in the U.S. Most of them are in Texas, California and Florida. Doctors are trying to find out why. For more information on Morgellons, go to the Morgellons Research Foundation at www.morgellons.org.

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