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The data and information presented in this web site are presented in good faith and believed to be accurate. Any and all liability for the content or any omissions including any inaccuracies, errors, or misstatements in such data or information is expressly disclaimed. The web site is compiled for the sole purpose of informing community members of resources and information pertaining to Lyme Borreliosis Disease and its coinfections.
The Canadian Lyme Disease Foundation, Directors and members are not liable for any direct or indirect damages or any damages whatsoever resulting from loss of use, data or profits, whether in an action of contract, negligence or other tortious action arising out of or in connection with the use or performance of information available from this website.
Consult a qualified Lyme ( Borreliosis ) Disease literate doctor for medical advice if Lyme Disease is suspect.
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My Story... by Mary de Liser
I have Lyme disease.
I was literally brought to my knees by a tick bite right here in southwestern BC.
The bull's eye rash (erythema migrans) appeared in mid Sept. 2002.
A doctor at a walk in clinic dismissed it a simple insect bite, perhaps a spider bite, and told me not to worry.
Flu-like symptoms then began, followed by fever, nausea, fatigue, muscoskeletal pain, head buzzing and ears ringing.
I carried on and got sicker through winter and spring.
By June of 2003 I was unable to work due to an avalanche of symptoms.
I was crawling on the floor, crying and suffering from unrelenting and excruciating pain throughout the entire body while also afflicted with sharp, electric shock like pains, dizziness, nausea and impairment of my cognitive and short term memory.
I was in a wheelchair and in bed suffering from total exhaustion.
I saw a picture of the bull's eye rash on the U.S. Centers for Disease Control web site and got tested by our provincial labs for Lyme borreliosis.
Result...Negative.
The CDC clearly states that lab tests are inconclusive and not reliable with false positives and false negatives, noting that the disease is to be diagnosed clinically.
Lyme disease is reported in Washington State and on the Alaskan panhandle. How then can it be rare in BC?
Lyme disease is here and very real. If I can get it, anyone can.
On July 6th, 2003 I found Dr. Murakami of Hope, BC via the internet.
On July 12th, 2003 he diagnosed Lyme disease and prescribed treatment of heavy load antibiotics that day.
To date, there has been much improvement; although I still have a long way to go, having suffered for 10 months before diagnosis and treatment.
Even so, I am one of the lucky ones. Many people go without treatment for years and years. Even worse, they are given improper, too short treatment and suffer total relapse - or even death.
Dr. Murakami probably saved my life. This man stands alone in the medical community issuing alerts and warnings about Lyme.
But the problem is other doctors, out of reluctance or plain ignorance, are unable to diagnose or treat this horrible disease. Early diagnosis and treatment is quite effective.
Delays mean longer treatments and more permanent problems.
Of course, the cost of treatment is high when left late. The alternative is heart and other internal organ problems, surgeries and total disablility.
Is my life not worth the treatment, not worth the effort of a diagnosis?
Mary de Lisser
Abbotsford, BC
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