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Lyme Disease in Canada, information and support for Lyme in Canada



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Lyme Disease symptoms vary from person to person. (lymes disease lyme's disease lime disease limes disease)
The data and information presented in this web site are presented in good faith and believed to be accurate regarding Lyme disease (commonly misspelled lymes disease lyme's disease lime disease limes disease) and other related diseases. Any and all liability for the content or any omissions including any inaccuracies, errors, or misstatements in such data or information is expressly disclaimed. The web site is compiled for the sole purpose of informing community members of resources and information pertaining to Lyme Borreliosis Disease and its coinfections. Lyme disease symptoms may vary from person to person. The Canadian Lyme Disease Foundation, Directors and members are not liable for any direct or indirect damages or any damages whatsoever resulting from loss of use, data or profits, whether in an action of contract, negligence or other tortious action arising out of or in connection with the use or performance of information available from this website.
Consult a qualified Lyme ( Borreliosis ) Disease literate doctor for medical advice if Lyme Disease is suspect to discuss your Lymes Disease Symptoms.
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Proper Tick Removal Instructions Click Here
Europe has 85,000 cases of Lyme per year, see page 12
World premiere of Lyme documentary film, "Under Our Skin"

Attorney General orders Infectious Disease doctors to do an open review of their Lyme guidelines due to conflicts of interest, and for ignoring evidence-based science that disagrees with their pre-determined positions. Read here

Magnotta Winery presents the 3rd annual 'True North Classic' Golf Tournament, June 16th, 2008 - in support of the CanLyme goal... For information on how to register, Click here.

Also, join Magnotta Winery in their candlelit, underground barrel cellar for a unique winery and live music experience with proceeds going to CanLyme - April 3rd and April 10th, 2008 Details

Conference on Lyme disease Saturday, May 17th, 2008


ABC TV tackles what may be the pandemic of the 21st century
- Global TV Edmonton tells of Lyme struggles and poor testing
- Edmonton teen article triggers letters to editor.
- Edmonton teen's 'living death' was Lyme
- Chest pain in military recruit...Lyme disease
- Lyme victim wins appeal, Infectious Disease doctors wrong
- Fredericton, NB woman pays hefty price...Lyme
- Ontario victim tells newspaper his Lyme saga
- Listen to CFAX radio show open line on Lyme
- CHEK TV does follow up night on Lyme
- CBC TV in BC update on Lyme
- CHEK TV Vancouver/Victoria airs another woman's plight
- More on Lyme Disease, Global TV Feb. 27th,'08
- Watch the Global TV piece on Lyme aired Feb 26,'08
- CBC TV BC Girl struggles with Lyme and system Feb. 26,'08
- Tick positive for Lyme on cat in Pictou, Nova Scotia
- Canlyme asks Tony Clement for a federal Lyme strategy
- New Glasgow, NS newspaper reports on Lyme victim
- National Post, "Parasites put health agency on alert"
- Carnegie Hall benefit for Lyme disease on Mar. 22, 2008
- Lyme-like disease syndrome in Brazil
- CanLyme letter to U.S. National Governors Assoc. in response to the IDSA
- CanLyme Wall of Hope a huge success! For more information click here
- Canadian book of poetry and photography donates percent of each sale to CanLyme
- Book with Canadian's Lyme horror stories wins major award!! Order it here!
- New Canadian laboratory lyme guidelines...Are death and disability the result?
- Magnotta Winery produces a
Wine for Lyme
- Celebrity golf tournament was a smashing success(click for details)
- Does treating Lyme disease cause antibiotic resistance?
- U.S. Lyme statistics to 2005

- Canadian doctor reviews IDSA Lyme guidelines

Read Canadian Lyme News
Global Lyme News
New Class of Medicine Beat Viruses and Bacteria
2 Year Johns Hopkins University Study Indicates
Blood Testing Inaccurate - 2005
Click here for amazing video of live spirochetes in skin cells
A well done unbiased summary of the 2 views of Lyme
Lyme Disease: A Public Health Crisis Ignored
ILADS Supports $100,000,000 Lyme Bill in US
A Summary of the LDA and ILADS conferences, Philadelphia, October 2005

tick on hand shows size of nymphal tick when most dangerous Lyme disease is now an epidemic in several US states.4 Estimates are now at 3 million cases of lyme disease in the US in 3 decades. Most of these cases are from states that border Canada yet Canada reports it has only had a few hundred cases...? See an epidemiological map of what is immediately across our border. Canada has no such info - yet where we look we find lyme.

Lyme borreliosis is now acknowledged as the most highly prevalent arthropod-borne human disease in northern temperate regions of the world5. Canadian medicine and science, due to the lack of recognition of the clinical diagnoses, combined with lack of surveillance and research, places us at the bottom of the scale in dealing with this serious disease. We are years behind.

Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Psoriatic Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud's Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth's Fisease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses.
If you have received one of these diagnoses please go to our symptoms page and see if you recognize a broader range of symptoms.

If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.

If you feel you may have Lyme Disease you are encouraged to contact us. If you have a rash please photograph it (a close-up) and send it to us with as much detail about date/time, place, any tick bite noticed. Please include your name and phone number for our records in trying to track this disease. All information is confidential and shall never be released to anyone without your written consent.

Read this from 1993... where are we now - no better?

Ronald S. Ferris, Calgary, Alberta, deceased (1945-2000), made many a profound statement about Lyme Disease in Canada prior to his death. Read more about Ron and the impact he had on others and take the time to read that interesting and informative web site.

Lyme Disease....A vector borne disease (ticks are one known vector) which has caused controversy in the past decades because of its difficult diagnosis and treatment. The organism is highly fastidious, growing extremely slowly in tissue culture (not bacteriological) media. The vast majority of body fluid or tissue samples from patients with Lyme disease do not yield spirochetes on culture. Lyme disease is thus usually clinically diagnosed. Possible detection of serum antibodies to burgdorferi may only augment the clinical diagnosis. However, acutely antibodies may not occur in detectable titer, making early diagnosis difficult. Many later stage seronegative patients are very symptomatic and treatment intervention has been shown to be very effective. The tick O.hermsii has been implicated as a possible vector and some Canadian cases are reviewed. Lyme mimics many other diseases but clearly an educated doctor will recognize lyme symptoms and include lyme in the possible diagnoses.

The first documented case of Lyme disease to have originated in Canada (see CMAJ) was an 8-year in Alberta at Pigeon Lake. In 1984 a (Journal details here) 51 yr old French female nurse visited Quebec, Canada from 20 July to 5 August, 1984 and contracted Lyme disease. She reported an insect bite on 3 August 1984 on the back of her knee with erythema chronicum migrans appearing at the site of the bite on 5 August 1984. The patient presented with meningeal lymphocytic reaction near the end of September, 1984. Total Ig serum titers in indirect immunofluorescence tests on 1 October 1984, 10 October 1984, and 10 January 1985 were 1/512, 1/2048 and 1/16,384, respectively.

Lyme Disease is not the only tick borne disease in Canada but can be complicated by multiple tick-borne co-infections such as Ehrlichiosis, Babesiosis, and Bartonella. Other tick borne diseases include Tularemia, Tick Paralysis and Rocky Mountain Spotted Fever.

Lyme Disease is determined by clinicians, not labs
...no lab has a gold standard test to date, some labs are just better than others.


The only treatment available to date is antibiotic. If caught early and treatment given in sufficient dosage over sufficient time all is well in most cases. There remains a significant number of treatment failures usually as a result of insufficient dose/time of treatment and/or late diagnoses.

These treatment failures have proven to benefit significantly from longer term antibiotic treatment and patients sometimes have to be very demanding to receive such treatment.

One has to be realistic...not being able to find something by available methods in science means nothing to the sick patient who recovers after many weeks/months of appropriate treatment.

Therein lies the difficulty and undermining of appropriate treatment. The cost of treating lyme disease with antibiotics can be expensive in the relative short term so without a doubt business/politics become involved. Without a definitive test the door is left open for money to rule over health. However, the cost of not treating lyme, or treating it inadequately, is infinitely more expensive.

The majority of research is funded/lobbied by 1. Insurers (motivated to keep treatment costs/duration to a minimum). 2. Governments (heavily lobbied by private/public insurers as well as tourism dollars). 3. Drug manufacturers (motivated to peddle drugs).

The results of this heavily influenced research are what we educate our medical students with, who then become our doctors with a bias.

Therefore it takes the wise front line physician to wade through the swamp and treat the patient using good sound judgment. The better doctors learned early on that some of what they were taught just didn't add up when they encountered their real world patients. Common sense still applies...even in science.

Symptoms may show up fast, with a bang, or very slowly and innocuously. They may creep into ones life over weeks, months or even years.

While antibiotic treatment carries risk, it pales in comparison to the serious danger and cost (in productivity, income and family) of developing late stage illness that may develop within weeks even before the first lyme tests have returned.

Learn here what can and should be done.
Consult a qualified Lyme Disease literate doctor for medical advice if Lyme Disease is suspect.

Ref:
1. CDC MMWR Weekly
2. http://www.jemsekclinic.com/lyme1.php
3. http://www.medtech1.com/research_center/cond20.cfm/48
4. http://www.canlyme.com/confirmedUScasesto2003.html
5.Lyme Borreliosis: Biology, Epidemiology and Control Edited by J. S. Gray, University College Dublin, Ireland, O. Kahl, Free University of Berlin, Germany, R. S. Lane, University of California at Berkeley, USA, and G. Stanek, University of Vienna, Austria September 2002 480 pages




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New book, about prominent Canadians
donates sales proceeds to CanLyme.
Order now!!

NHL goalie Nolan Ryan of the Minnesota Wild partners with CanLyme    visit his website
Free tick remover, repellent with donation
Lyme Testing Labs
Canadian Grade 9 student gives impressive Lyme Powerpoint presentation
(may take a few minutes to load)

Lyme In Your Province:
British Columbia, Alberta, Saskatchewan, Manitoba, Ontario, Quebec, New Brunswick, Nova Scotia, P.E.I., Newfoundland
lyme cases now outpace aids in North America

CDC reports 40% rise in Lyme disease
The incidence of Lyme disease jumped 40% from 2001 to 2002 and reached an all-time high of 23,763 cases, federal health authorities report see US Centers for Disease Control and Prevention. These are confirmed cases which are underreported 10 fold1,2,3 according to estimates by the CDC putting the actual number over 230,000 cases for the year 2002 alone.


Are you a victim of colloidial silver poisoning
Many cases of argyria (permanent dark discoloration of skin caused by overuse of medicinal silver preparations) are now surfacing.
For help contact argyria@yahoogropups.com