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Lyme disease in Canada, all you'll need to know about Lyme in Canada
Books/Video on Lyme Disease

Association of American Physicians and Surgeons, Inc.

A Voice for Private Physicians Since 1943
Omnia pro aegroto

Volume 64, No. 6 June 2008

Antitrust Investigation Shows Guidelines Flawed

On May 1, Connecticut Attorney General Richard Blumenthal announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing Lyme disease guidelines. Although IDSA called the guidelines "voluntary," they are used by UnitedHealth Care, Health Net, Blue Cross of California, Kaiser Foundation Health Plan, and other insurers to deny payment for long-term antibiotic treatment. They strongly influence physicians' treatment decisions and are frequently cited to justify conclusions that chronic Lyme disease does not exist.

Blumenthal found that IDSA failed to conduct a conflicts-of- interest review and that influential panelists had a conflict. Failure to follow its own procedures enabled the chairman to appoint a hand-picked panel, without scrutiny. The Lyme panel refused to consider dissenting opinions, and once even removed a member in order to achieve "consensus." IDSA tried to portray the guidelines promulgated by the American Academy of Neurology (AAN) as independent corroboration, when in fact the panels shared key members, came to the same conclusions, and used the same wording. IDSA then used the AAN's supposedly independent findings in attempt to defeat federal legislation to establish a Lyme disease advisory panel and state legislation to support antibiotic therapy for chronic Lyme disease.

IDSA and AAN reject the guidelines of the International Lyme and Associated Diseases Society (ILADS) because it cites evidence they consider insufficiently rigorous. (Neurology Today 10/16/07). IDSA and AAN rely heavily on randomized controlled double-blind studies; however, "when a positive result is found, they discredit the study," notes neurologist Lawrence R. Huntoon, M.D., Ph.D. Too many patients in the study (Neurology 2003;60:1923-1930) guessed that they were in the treatment group, suggesting that "unblinding" had occurred.

AAN's confidence in its ability to judge the effectiveness of treatment is apparently not dampened by its inability to make an accurate diagnosis of neuroborreliosis (neurologic Lyme disease). The state-of-the-art antibody test has too many false negatives (Neurology Today, op. cit.)

Insurance coverage is not the only issue. Malpractice attorneys can attack physicians who do not follow guidelines which become the de facto "standard of care." And insurers can file anonymous complaints with medical boards about noncompliant physicians. "Too expensive" = "practicing below the insurance standard of care," notes Dr. Huntoon.

Sheila M. Statlender, Ph.D.
Clinical Psychologist
53 Langley Road - Suite 330C
Newton Centre, MA 02459
617-965-2329

AAPS

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